The Life Where Time Stands Still
Hi all,
Haven't wrote in a while because nothing new has happened. Our life has become circular...... everyday is the same. We have stopped saying.......Monday....Tuesday ...Etc. We now just say day!
I get up, sort myself out. Go to be with Kayla....mmmmm the Tube
In order to fend off Kayla's iminent insanity......we watch day time TV !!!!! (is Jeremy Kyle real??? is TV a good idea????)
I now know all about counseling, property and cookery from TV and nursing procedures, physiology, stoma care, clinical medicine, surgical procedures and NHS latin from living in a hospital for the last4 months!
Something has GOT TO CHANGE!!!!!!!!!
And change it has.....................Kayla has now been moved from a 100000000 bed ward to a specialist 8 bed Unit! She is in the Intestinal Failure Unit. She is no longer a bed number in a hell hole.
She is once again a person with serious complications who needs and is receiving the finest care the NHS has to offer. In addition to care from wonderful staff, she is allowed out when she is able. So every day or two when she has built up her strength we either go to my flat or home! May not sound like much to you lot but it is a massive expedition to Kayla. She is "cream-crackered" by the time we get back to her room each evening.
The latest news on the gut problem is .......Kayla had to drink 30 pints of "speckled hen" ooops sorry fantasising there .........no Kayla had to drink a liter of barium and then have lots of imagery taken as the horrid stuff went from entry to exit! The results of this is there seems only one small problematic area and surgery may be the most expiditious route to obtaining a result!!!!!!
She is awaiting a consultation with the surgical team..............how long will that take??????? How long is a piece of string?????????
She needs to get home, I need to get home, we both need to get home, our kids need us home. Poor Zak our youngest he said "mummy has been away during the Easter holidays, then half-term...will she be home for the Summer holidays dad????????" I could not give him an answer or promise him anything. It was heartbreaking.
When will this rough road stop twisting and detouring?????? Your guess is as good as mine.
posted by The Quill of Stu at Thursday, June 01, 2006
4 Comments:
Stu and Kayla....there are a host of messages waiting on Jo's for you all...we have been worried as we have not heard for a while. Log on...support is winging its way to you all. Love Mary
Stu..Kayla...there are loads of messages for you on Jo's. We were all worried about you as we have not heard in a while.
Log on...Love is where you find it...Jo's sending it to you all.
Love Mary Davies
Good to hear from you again!!! At least you are getting a change of scenery every now and again - hope to see you sometime soon - Love to you all Steve Nic and Boys x x
Hi there, Saville's here - hope too that you get home soon Kayla (back to all that washing, ironing,etc...!) No, hope things go well for you, and soon. It's good that you keep up with the news Stu and it is nice to keep in touch via the blog. Keep smiling all of you.
Helen, Chris and Zoe Saville xx
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