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Hello all,

Good evening and here is the News @ 10 ................................

Boing!!!!! Kayla still in Hospital!

Boing!!!! Kayla's PICC line fails!

Boing!!!! Kayla Has Central Line fitted.

Boing!!!! TPN feeding now more effective including lipids!

Boing!!!! Plan formulated to address intestinal failure

Boing!!!! Kayla scheduled for more surgery next month or August.

Boing!!!! Budget approved that will allow Kayla to "home feed" until surgery!

Boing!!!! Kayla's pain control at an all time low........................so is pain!!!!!!!

Boing!!!! Kayla undertaking excersise in order to prepare for surgery!

Boing!!!! Stu's Garden wins the 2006 Hampshire "Your Garden Looks Like Jurassic Park" Competition for the second year running!

Good evening, today in North London Kayla's life remains stuck in Saint Marks Hospital. We have had many room moves, cock-ups, car crime, monotomy, insainia, arguments, laughs, tears and tantrums. However, the normal daily grind has given way to a sort of flimsy plan.

The surgical team have visited and have decided that Kayla is a viable prospect for surgery. They hope to bypass the problem area but have stated that anything could happen once they get in there. Best case is the problem is fixed, middle case is she loses the colostomy and gains a Illiostomy, worst case is they retreat and do nothing due to the poor state of her insides.

Kayla just needs a resolution to her present state of "hospitalisation with no direction".

On the surface she is brave, solid, gallant, focused and willing for surgery. In fact Kayla would consider and try most anything that would fix the current problem and restore her to some form of a normal quality of life.

Stevie G

NO!...........drop that thought out of your mind!.....................your plan is................

A. Not a medical proceedure and;

B. Would only put a smile on your face!!!!!!!!!!!!! and;

C. Ileagal in most god fearing countries!

Down boy!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Down!!!!!!!!!!!!!!!!!!!!!!

Under the surface Kayla is a jibbering wreck, very low, terrified, and doubting if anything will ever sort this nightmare out!

I struggle most days to motivate her and get a posative day done and dusted. She does however, come home for one day most weekends! However she does pay the price for missing one nights feed by suffering weakness, dizziness and acute nausia.

Since the anouncement of the plan she has started to exercise and has developed a more upbeat attitude to fittness and beating the latest snags. Kayla's sunshine sometimes gets obscurred by clouds (the ongoing cancer situation and acute intestinal failure!!!!) but you can always guarantee that within a day the skies will clear and her sunshine will shine on through.

I am glad that her spirit shine on through as she is my guiding light and keeps me from crashing and burning.

So in the short term we are aiming for home. Nurses will come in and set up the TPN on a daily basis. kayla will continue to increase her fittness and we will spend every waking minute with our children who we have not really seen since Feb!

At this time we are probably lower than at any time throughout this journey but that is due to fatigue and just a lack of momentum................we are down but not out...........We'll be back!

Watch This Space!!!!!!!!!!!!!!!!!!!!!!!!!

Stu & Kayla XXXXXX

P.S

Steve and Nikki thanks for you support. We hav'nt chatted in ages. I mean to phone you but I don't get home most night until 10pm and then think it's too late. We must arrange to meet once this bilge is over....XXXXXX