Kayla is now at Saint Marks and has come to terms with the fact that is is nothing like the Royal Marsden in either environment or staff.

The main fact is this is the home of the GI specialists and that is key to getting her skinny little arse home!!!!

Kayla had to wait over 35 mins yesterday for a nurse to answer the bell! Then a further 1 hour 25 until pain releif was organised. Even then when it arrived it was the wrong type of oramorph!!!!! (She left the RM with a very comprehensive drugs list written up by her onc team!

The reason for the market and greengrocers is that the food they serve is horrid! (even I wont eat it!) and what a menu for people with either GI problems of colostomys ........lentil curry!........spicy sweetcont stew!....cabbage....brussels sprouts!!!!!!! Honestly its mad and soooooooooo spicey!

Finishing on a high point. Kayla said her doctor is very pleasing on the eye (George Clooney Clone) and very upbeat about fixing her and getting her home sooner rather than later!

Guess What????????????

Guess what ?????????

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Kayla now is in room S2 at St Marks.... BLIMEY & COR LUMMY GUV!!!!!!!!

Kayla is sooooooo far out of her comfort zone....that she is a jibbering wreck!!!!! and not overly happy (its not the Marsden)

But these are the peeps who will sort out the non-complient bowel...(or what's left of it!!!!!)

Hey I think that hospital is the tops ...................it has a green grocer!?! selling corn on the cob....asparagus....cabbage!!!!!!!!!!!!!! That is so wierd...WHY???????? Most of these peeps cannot eat VEG!!!!!!!

Anyway, less of the rambling............... the plan is either Kayla gets surgery or is sent home with TPN forever!!!!

As a doctor said to me today the bowel is a mysterious animal....animal??????? what is that all about?

These guys are the top international league premireship cup winners-cup-winners of the GI world (well their web site says so! )

So lets hope they sort out my little "stick-insect"!!!

Take care Yawwwwwl.

As the NASSA message reads........."Housten we have momentum again on Kayla's case"

This is Stu, News @ 10:33....Bayswater................... London xxxxxxxxxx

Time to Shift

Hello ladies and gents,

Well, as you all know I have been reporting Kayla's progress (and sometimes lack of progress) on here since I returned from the Falklands in Dec 05. God knows how many posts I have done now but the story continues.

The referral letter went to St Marks on friday and St Marks responded today. Kayla had to fill out a registration form and fax it back. Then had to be swabbed!!!!!! Nooooo not like a pirate! Its an MRSA screening swab............... Nose, Mouth, Armpit and female-lady-bits-of-the-opposite sex!!!! So now she is waiting for a bed....................

I walked back to the tube today up Onslow Square and Sumner Gardens. Wow! what a pretty place in May. Green, blossom, plants, colour,..... yes....... Summer is approaching!

When Kayla was admitted the trees were bare.

Winter had it's grip on London. I would fight my way through sub-zero temps, wind, blizzards, frost, rain, (and tourists).

Now its' so hot in the mornings I just wear nothing but a a tee-shirt !

(yep! no pants! just a tee shirt!!! EEwwwww!) As I fight through the tourists!

A thought came to me today. Kayla has been in hospital now for 2 seasons now! (13 weeks!)

She needs to go home.............and soon I hope........

Latest News

Well it's official,

Kayla has now been formally referred to another hospital, St Marks in Harrow.

The Royal Marsden has carried out its initial role in Kayla's treatment. They are cancer specialists and at this time Kayla needs a capability that specialises in gastro intestinal medicine. St Marks is an international center of excellence.

There is a 2-4 week referral lead in time but she has been classified as urgent. She will now sit and wait at the RM until called forward.

This is a step in the right direction and after some slow down in treatment we now seem to have picked up the momentum again.

We don't know what will happen at St Marks, but surgery is still an option and so the tale goes on!!!!!!