Pain!!!!

It has been a rough few days for Kayla since surgery due to pain control issues.

Her epidural failed on thursday at 3pm and only got replaced by 9pm! She was climbing the walls.

In addition she has been on oppiates for so long now that she has built up quite a tolerance, so her dosage is at the maximum for her weight but only gives minimal releif!!!

She also had a bit of a blip on friday with a touch of tachicardia and poor O2 saturation (signs of a pulmonary embolis!!!!!) The intesive care team were on the ball and K was in the emergency CT scanner within 15 mins! No clots but a significant amount of fluid on her right lung. That was sorted over the weekend but the pain issue was not being resolved.

Kayla was either doped out of the real world into Laa laa land or was in a whole world of pain! Yesterday they tried plan B with an interfeatal block. Like an epidural but more invasive similar risks but if successful a whole lot more effective. I was a little woried as these are used to treat the pain of patients who are "Not" expected to get better!!!!! The pain management consultant said this was not Kayla's case this procedure was being undertaken in order to give Kayla a break and to enable her to get some rest and concentrate on getting better.

I phoned in this morning and she had had a quiet night.

Anyway must crack on .............................................it's my day off from hospital and I have a farmyard of a house to clean and a ten year old to entertain!!!!!!!!!

SUCCESS!!!!!!!!!!!! well at this point in time anyway (ooops! seem to becoming cynical!)

Hi all

Just a quickie as London Internet Cafe prices are criminal!

Kayla went down for Surgery yesterday at 3PM It was the pain team fitting a new epidural first followed by the gynae team then the bowel team who started at 5PM.

Kayla was back in CCU by 8:45PM and I saw her at 9:30PM. She was on a ventillator and so did not know I was there.

The Op phase was a total success with the fistula being bypassed and her small bowel resected so she did not wind up with an illiostomy to go with the colostomy and urostomy!!!!! (Just too many "Tomy's") Mr B said it had been a text book procedure with Kayla staying stable throughout!

ABOUT BLOODY TIME!!!!!!!!

They woke her up just now and took her off the ventillator. She will spend a few days in the CCU as she has a history of being naughty! (Well a suspected pulmonary embolism that she had last time is very very naughty in the CCU's book!) So fingers crossed she will carry on in this positive manner. She does have a temp and is in a lot of pain but hey bowel surgery aint a walk in the park is it???

Take care all............................. I had better get back

Stu

Surgery Tomorrow - GULP!

Well peeps the MRI results are back and the hole is to large to heal on its own. They are also struggling to manage the pain. Kayla had so much opiates that her BP dropped, her breathing tailed off and she could not be woken! Caused a bit of a flap I can tell you!

Anyway surgery tomorrow. This will be riskiest yet with a large chance of failure or even worse! I am bricking it! Off to London tomorrow for 5 days whilst she is in intensive care.

Will keep the blog updated.

Back In Hospital

Kayla has been steadily losing weight and the doctors were mystified yet determined. Well last Tuesday it all came to a head. Kayla's pain was at an all time high and then stopped. She developed some rather nasty symptoms (an I mean nasty). It transpires that an abscess within her pelvis had caused a fistula to develop between her small bowel and the pelvic cavity. The result is partly digested food exiting from somewhere that you really would not expect food! The acids in this food wreak havoc on the tender flesh. Kayla said that it was the worst pain that she has ever experienced. She is back in the Marsden and will be there for 6 - 8 weeks! She is nil by mouth and can only use water to take her tablets and wet her mouth! NOT HAPPY! At this time surgery is not an option as Kayla is too weak, thin and malnourished. So chapter in this sorry tale opens with Chapter's 1 through 3 (Cancer, intestinal failure and pancreatic dysfunction) still ongoing.

When will this woman get closure.................... even closure of just 1 problem would be a refreshing change!